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Narcolepsy caregiver Monica Gow

Progress for Patients

Caregiver Spotlight: Monica Gow

National Caregivers Day 2025


After a complex path to her son's diagnosis of narcolepsy, Monica Gow struggled to find resources and support as she navigated life as a caregiver. On this National Caregivers Day, Monica shares insights from her experience to help others who may be at the start of that journey. 

With her husband, Monica co-founded a nonprofit organization, Wake Up Narcolepsy, to make information about the disease more widely available and address gaps in research funding. 

Watch the video below to hear from Monica about lessons learned and the impact of her work as an advocate.